Advancing the Science of Community Engaged Research

This blog post comes to us from our Co-Investigator, Teri Browne, PhD, MSW

Last week, I had the exciting chance to attend the Advancing the Science of Community Engaged Research Innovative and Effective Methods of Stakeholder Engagement in Translational Research conference in Washington, DC at the Association of American Medical Colleges. PREPARE NOW Principal Investigator L. Ebony Boulware and project director Patti Ephraim were also in attendance, and together we learned more about doing research with community partners and ways to conduct research that means the most to communities.

Dr. Boulware delivered the opening plenary session at the conference, talking about “Promise, Partnership, and Process: Perspectives of a Clinical Researcher” to an engaged audience of community members and researchers from across the country. In her talk, she shared ways that she worked with patients and communities to do research in kidney disease and hypertension.
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I was honored to present as part of a panel in a Learning Lab session, “Partnering with Patients, Families, and Other Stakeholders in Healthcare Systems Research: Examples and Lessons Learned from Six PCORI-Funded Studies.” In this Learning Lab, I talked about the work that we are doing in PREPARE NOW, joining PCORI representatives and researchers from five other PCORI-funded projects from U.S. We were excited that we had a full room of people attend this session, and that I could share information about the ways we have been collaborating with patients with kidney disease, their family members, and community stakeholders to help change a health system to improve kidney care.

Attending this conference with Ebony and Patti was very inspirational as we listened to ways that we can better help the patients and family members working with us be part of our research project, and it was very exciting to share information about our project to this national audience!

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